Our collaborators at Workwell Foundation have published a review concerning chronotropic incompetence in ME/CFS patients. What this means is that studies that have ME/CFS subjects exercise to a percentage of their maximal heart rate may be actually having the subject exercise at their maximum capacity, since their actual heart rate may often be lower than expected. Please see the link below to be directed to the publication.
This past November, @DrMaureenHanson visited the Okinawa Institute of Science and Technology Graduate University in Japan to participate in their distinguished speaker series. Dr. Hanson’s talk provided general awareness about ME/CFS and shared details on the Center’s research. In particular, the research topics covered were the functioning of immune cells, cellular metabolism, the microbiome, neuroimaging, and exercise physiology. While in Japan, Dr. Hanson spoke with a representative of the Japan ME Association. ME/CFS researchers in Japan hope to attend the April 2019 NIH meeting.
Let us welcome Carl Franconi to the Cornell ME/CFS Collaborative Research Center team. He will be joining us as the Manager for the Center for Enervating NeuroImmune Disease. Carl will be taking over the administrative workload from Ms. Susi Varvayanis, who has recently taken a full-time position in the Graduate School to pursue her interest in supporting PhDs interested in non-academic careers, a role she had been carrying out part-time while efficiently managing our NIH ME/CFS CRC.
The Hanson lab, which is a member of our Center, has recently published a metabolomics study in the journal Metabolites. Visit https://www.facebook.com/CornellMECFSCenter/ for a summary of the article. The complete publication can be accessed using the link below.
Arnaud Germain, David Ruppert, Susan M. Levine, and Maureen R. Hanson. 2018. Prospective Biomarkers from Plasma Metabolomics of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Implicate Redox Imbalance in Disease Symptomatology. Metabolites 8(4), 90
The Chronic Fatigue Syndrome Advisory Committee (CFSAC) June 20 & 21 meeting agenda, audio recordings, and transcripts are now available to the public. This committee provides advice and recommendations to the Secretary of Health and Human Services. Many agencies take part; their presentations follow.
The Weill Cornell Medical Center is recruiting individuals between the ages of 21-65 whose doctor has found no cause for their severe fatigue. Please contact Xiangling Mao by phone at (212) 746-2632 or email at firstname.lastname@example.org for more information about the study and to determine if you are eligible.
Study participation includes a visit to the study physician’s office to fill out a questionnaire on physical and mental health, and a medical examination. If deemed eligible, a visit to Weill Cornell Medicine includes a questionnaire, magnetic brain imaging (MRI), blood draws, urine tests, a cardiopulmonary exercise test (CPET) and positron emission tomography scan (PET). Participants will be compensated for their time.
Please see the NYC -Recruitment-Flyer for additional details, and share it with others who are able to travel to the site if they are deemed eligible.
The second annual Community Symposium on the Molecular Basis of ME/CFS will be held at Stanford University on September 29, 2018. Maureen Hanson is among the distinguished list of speakers.
Sponsored by Open Medicine Foundation (OMF)
WHEN: Saturday, September 29, 2018
WHERE: Paul Brest Hall, Stanford University, Palo Alto, CA
Full details about the symposium can be found here.
UPDATE: Maureen’s complete talk was recorded and can be viewed here.
UPDATE (04-2019): The recruitment flyer has been revised with the new IRB approval number. Please navigate to the flyer link below to retrieve the newest version.
Now that the IRB protocols have been approved, the recruitment and screening of ME/CFS patients and low-active control subjects will begin. To learn more about the process and what determines your eligibility, and to print a flyer to help us recruit participants, please see ME/CFS Recruitment flyer for Ithaca and Los Angeles areas. The total time commitment to participate is about 5 hours, excluding travel to and from the testing site.
Maureen Hanson joined other researchers, physicians, patient groups and journalists from around the world at the 13th conference to advance ME/CFS research. Here is a link to the full agenda.
InvestinME is producing a DVD of the presentations that can be purchased soon. An announcement will appear on the home page of their website.
The Solve ME/CFS Initiative’s (SMCI) Spring 2018 Solve ME/CFS Chronicle contains an article highlighting Dr. Marueen Hanson and the NIH-funded Cornell ME/CFS Collaborative Research Center. The article includes an interview with Dr. Hanson providing her perspective on ME/CFS research and more. Please see the links below to retrieve this information.
Additionally, SMCI hosts an archive of all of their publications here. It is a great way to review SMCI’s publications in one location.