Mitochondrial DNA mutation and disease

Zhenglong Gu, Ph.D.

Center member Zhenglong Gu, PhD, presented on mitochondrial DNA mutation and disease at Cornell University on April 19, 2019. Dr. Gu is participating in the ENID Center to examine the role of mitochondrial genomes in ME/CFS.

“Next Steps for ME/CFS Research”

Dr. Maureen Hanson

Dr. Maureen Hanson spoke on the “Next Steps for ME/CFS Research” panel at the NIH meeting “Accelerating Research on ME/CFS” on April 5, 2019.  The text of her statement and some by Dr. Jose Montoya on the same panel can be found here.  A transcript of the prior remarks at the meeting by Dr. Francis Collins is available here.

Outreach in Japan

Image Credit: admissions.oist.jp

This past November, @DrMaureenHanson visited the Okinawa Institute of Science and Technology Graduate University in Japan to participate in their distinguished speaker series. Dr. Hanson’s talk provided general awareness about ME/CFS and shared details on the Center’s research. In particular, the research topics covered were the functioning of immune cells, cellular metabolism, the microbiome, neuroimaging, and exercise physiology.  While in Japan, Dr. Hanson spoke with a representative of the Japan ME Association.  ME/CFS researchers in Japan hope to attend the April 2019 NIH meeting.

Community symposium

OMF logoThe second annual Community Symposium on the Molecular Basis of ME/CFS will be held at Stanford University on September 29, 2018.  Maureen Hanson is among the distinguished list of speakers.

Sponsored by Open Medicine Foundation (OMF)
WHEN: Saturday, September 29, 2018
WHERE: Paul Brest Hall, Stanford University, Palo Alto, CA

Full details about the symposium can be found here.

UPDATE: Maureen’s complete talk was recorded and can be viewed here.

Invest in ME Research Conference

Maureen Hanson joined other researchers, physicians, patient groups and journalists from around the world at the 13th conference to advance ME/CFS research.  Here is a link to the full agenda.

InvestinME is producing a DVD of the presentations that can be purchased soon. An announcement will appear on the home page of their website.

Advancing the ME/CFS Research Agenda

The first Canadian Collaborative Team Conference held in Montréal, Quebec on May 3-5, 2018 brought together researchers, clinicians, patients and advocacy organizations to advance the ME/CFS research agenda from basic research to clinical practice. The conference was supported by the Canadian Institutes of Health Research and other stakeholders to address one of the most pressing medical mysteries of our time, with millions of individuals afflicted by this devastating illness.

The agenda was organized and driven by a quest for increased collaboration, with hopes to leverage the collective knowledge and unite pockets of innovation to transform the research landscape in a commitment to improve the health of patients suffering from ME/CFS in Canada and around the world, according to Continue reading

Regional Lecture Series at Cayuga Medical Center on ME/CFS

In her talk entitled “Current Clinical Diagnostic Criteria and Knowledge of the Biological Basis of Myalgic Encephalomyelitis / Chronic Fatigue (ME/CFS) Syndrome”  shared recommendations to medical personnel, nurses and physicians, who received continuing education credit.

The participants, who attended in person and online, learned to utilize the clinical diagnostic criteria for ME/CFS recommended by the National Institute of Medicine. Dr. Hanson shed light on the current scientific information available about the causes and effects of the disease, and shared ongoing research to develop an objective diagnostic test and treatments for the disease. The audience engaged in lively discussion following the presentation.

A New Era of ME/CFS Research

The Solve ME/CFS Initiative gathered preeminent leaders from research centers, federal health agencies, ME/CFS clinics, and the biopharmaceutical industry in Washington DC in October 2017 to participate in SMCI’s Second Annual Discovery Forum. Fifteen presentations from Discovery Forum 2017  are now available to the public, including A New Era of ME/CFS Research with Dr. Maureen Hanson, Professor of Molecular Biology & Genetics at Cornell University.

Official NIH kickoff meeting brings together collaborators

Vicky Whittemore & Joseph Breen

The National Institutes of Health headquarters hosted the leads of the recently funded ME/CFS Collaborative Research Center awards and partner organizations. The purpose of this kickoff meeting was to get to know each other and to begin to discuss collaborative projects that could be undertaken that would leverage each institutional expertise. After introductions, each awardee institution presented an overview of the research proposed, and an executive committee was formed to establish the framework within which data will be shared. Continue reading

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