Center Director Dr. Maureen Hanson will be presenting current scientific research on ME/CFS during a panel session hosted by New York State Department of Health (NYS DOH). The session titled “Scientific Research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in the Age of COVID-19” will be moderated by Dr. Charles Gonzalez. Dr. Ian Lipkin (Columbia University) and Dr. Avindra Nath (NIH) will be joining Hanson as panel presenters.
UPDATE: In case you missed the panel discussion, NYS DOH released a recording along with each presenter’s slides. Direct links to the recording and Dr. Hanson’s slides are below. Visit the NYS DOH ME/CFS website for more information.
At the Swedish RME annual ME/CFS conference on Oct. 14, 2020, Clinical Core Co-Director, Dr. Betsy Keller, presented virtually on post-exertional malaise (PEM). Keller goes into detail on PEM by covering what it is, ways to assess impairment due to PEM, and strategies to minimize PEM. Her full talk “PEM: Strategies for determining and managing the cardinal symptom of ME/CFS” can be viewed below and is also available on YouTube here.
For an English version of Swedish RME’s website visit this link.
On November 4-5, 2020, Cornell University and Weill Cornell Medicine held a COVID-19 Summit to exchange information about research into the disease ongoing at both institutions. Dr. Maureen Hanson presented a “flash” talk with three slides to introduce Cornell COVID-19 researchers to the similarity between long-haul COVID-19 and ME/CFS. Content from Hanson’s talk is below.
On September 23, 2020, a CDC ME/CFS Stakeholder Engagement and Communication (SEC) call took place, featuring a presentation by Dr. Maureen Hanson, ENID Center Director, on “Immune Dysfunction in ME/CFS”. Dr. Elizabeth Unger, Branch Chief of CDC’s Chronic Viral Diseases Branch, provided CDC programmatic updates. The SEC call transcript, audio, and presentation slides are now available on the CDC’s website. Direct links to specific content, including Hanson’s slideshow presentation, are below.
Jessica Maya, a graduate student in the Genetics, Genomics, and Development Program at Cornell University in Maureen Hanson’s lab, talks about ME/CFS, the immune system response, and the fuels that energize immune cells to properly defend the body. This talk was adapted from Cornell University’s 3 Minute Thesis Finalists Round Competition, where she was tasked to explain her thesis work in under 3 minutes in an engaging form that could be understood by an intelligent audience with no background in the research area.
For the ME International Awareness Day, Director Maureen Hanson is providing a Pecha Kucha on ME/CFS. This is a short video presentation in which 20 slides are presented, automatically changing every 20 seconds. This format has been developed to convey information quickly in a visual manner (see https://www.pechakucha.com/ for more information).
The International Association for Chronic Fatigue Syndrome / Myalgic Encephalomyelitis (IACFS/ME) held a virtual international scientific conference on August 19-21, 2021. Several members of our Center participated in this meeting by presenting either an oral or a poster presentation. In particular, postdoctoral associates, Arnaud German, Ph.D., and Ludovic Giloteaux, Ph.D., gave oral presentations on the impacts of a two-day CPET on metabolomics and extracellular vesicle proteomics, respectively. John Chia, M.D., gave two presentations on the implications of COVID-19 and enterovirus infections on ME/CFS.
Additionally, Adam O’Neal, Jessica Maya, and Paul Munn, Ph.D. presented posters at the conference. O’Neal presented work from his recent review on the enterovirus theory in ME/CFS. Maya showed recent findings on her immune cell metabolism experiments. Lastly, Munn displayed the progress he has made in creating an integrative database platform for the Center.
If you are interested in watching the oral presentations, recordings can be purchased on the conference website. Note that the recordings will only be available until October 22, 2021. Detailed information, including the full conference schedule, can be found on the conference website.
Maureen Hanson, Center Director, and Betsy Keller, Clinical Core Co-lead, presented at the Beyond the Symptoms: The Biology of Fatigue workshop. The workshop was co-sponsored by the NIH Neuroscience Blueprint Research Program and Sleep Research Society, and it took place on September 27-28, 2021. Hanson provide insight into fatigue from the perspective of immune dysfunction in ME/CFS. Keller drew from her experience in exercise physiology to elaborate on post-exertional malaise in ME/CFS.
Detailed meeting information including the agenda can be found on the event website. Recordings of the meeting are freely available on NIH VideoCast for Day 1 and Day 2, separately.
The Massachusetts ME/CFS & FM Association held their annual meeting on Oct. 23, 2021. The meeting’s title, Advances in Our Understanding of ME/CFS and the Effects of Long COVID, highlights the theme of this event. Dr. Maureen Hanson, Center Director, was invited to speak at this meeting. Hanson’s talk provided a summary of ongoing work at the ENID Center. Mass ME/CFS & FM has uploaded the talks from this meeting to YouTube. You can watch Hanson’s full talk below, and the complete playlist of all talks from the meeting can be found here.
Dr. Daniel Peterson and Simmaron Research staff Dr. Gunnar Gottschalk and Marco Maynard provided blood samples from carefully diagnosed ME/CFS cases and controls that were critical for carrying out the study. Thanks to Simmaron Research and a private donor, as well as NIH, for financial support for the study. A press release was issued by NIH.
Furthermore, we have launched a new initiative to help expand the reach of our research. Dr. Mandarano has recorded a talk that walks you through this publication. The video is hosted on our new YouTube channel. Check out this video below and stay tuned for future posts and videos about our research.