The Chronic Fatigue Syndrome Advisory Committee (CFSAC) June 20 & 21 meeting agenda, audio recordings, and transcripts are now available to the public. This committee provides advice and recommendations to the Secretary of Health and Human Services. Many agencies take part; their presentations follow.
The Weill Cornell Medical Center is recruiting individuals between the ages of 21-65 whose doctor has found no cause for their severe fatigue. Please contact Xiangling Mao by phone at (212) 746-2632 or email at email@example.com for more information about the study and to determine if you are eligible.
Study participation includes a visit to the study physician’s office to fill out a questionnaire on physical and mental health, and a medical examination. If deemed eligible, a visit to Weill Cornell Medicine includes a questionnaire, magnetic brain imaging (MRI), blood draws, urine tests, a cardiopulmonary exercise test (CPET) and positron emission tomography scan (PET). Participants will be compensated for their time.
Please see the NYC -Recruitment-Flyer for additional details, and share it with others who are able to travel to the site if they are deemed eligible.
The second annual Community Symposium on the Molecular Basis of ME/CFS will be held at Stanford University on September 29, 2018. Maureen Hanson is among the distinguished list of speakers.
Sponsored by Open Medicine Foundation (OMF)
WHEN: Saturday, September 29, 2018
WHERE: Paul Brest Hall, Stanford University, Palo Alto, CA
Full details about the symposium can be found here.
UPDATE: Maureen’s complete talk was recorded and can be viewed here.
UPDATE (04-2019): The recruitment flyer has been revised with the new IRB approval number. Please navigate to the flyer link below to retrieve the newest version.
Now that the IRB protocols have been approved, the recruitment and screening of ME/CFS patients and low-active control subjects will begin. To learn more about the process and what determines your eligibility, and to print a flyer to help us recruit participants, please see ME/CFS Recruitment flyer for Ithaca and Los Angeles areas. The total time commitment to participate is about 5 hours, excluding travel to and from the testing site.
Maureen Hanson joined other researchers, physicians, patient groups and journalists from around the world at the 13th conference to advance ME/CFS research. Here is a link to the full agenda.
InvestinME is producing a DVD of the presentations that can be purchased soon. An announcement will appear on the home page of their website.
The first Canadian Collaborative Team Conference held in Montréal, Quebec on May 3-5, 2018 brought together researchers, clinicians, patients and advocacy organizations to advance the ME/CFS research agenda from basic research to clinical practice. The conference was supported by the Canadian Institutes of Health Research and other stakeholders to address one of the most pressing medical mysteries of our time, with millions of individuals afflicted by this devastating illness.
The agenda was organized and driven by a quest for increased collaboration, with hopes to leverage the collective knowledge and unite pockets of innovation to transform the research landscape in a commitment to improve the health of patients suffering from ME/CFS in Canada and around the world, according to Continue reading “Advancing the ME/CFS Research Agenda”
To celebrate ME/CFS International Awareness Day on May 12, clinical core Co-Director Betsy Keller joins Maureen Hanson and faculty from the University of Rochester and a patient advocate on an expert panel for AMERICA’S HIDDEN HEALTH CRISIS: What Clinicians and Others Need to Know about ME/CFS — as Documented in the Award-Winning Film Unrest and Shared Experience with New York Experts. MORE INFO
In her talk entitled “Current Clinical Diagnostic Criteria and Knowledge of the Biological Basis of Myalgic Encephalomyelitis / Chronic Fatigue (ME/CFS) Syndrome” @DrMaureenHanson shared recommendations to medical personnel, nurses and physicians, who received continuing education credit.
The participants, who attended in person and online, learned to utilize the clinical diagnostic criteria for ME/CFS recommended by the National Institute of Medicine. Dr. Hanson shed light on the current scientific information available about the causes and effects of the disease, and shared ongoing research to develop an objective diagnostic test and treatments for the disease. The audience engaged in lively discussion following the presentation.
The Solve ME/CFS Initiative gathered preeminent leaders from research centers, federal health agencies, ME/CFS clinics, and the biopharmaceutical industry in Washington DC in October 2017 to participate in SMCI’s Second Annual Discovery Forum. Fifteen presentations from Discovery Forum 2017 are now available to the public, including A New Era of ME/CFS Research with Dr. Maureen Hanson, Professor of Molecular Biology & Genetics at Cornell University.
The movie “Unrest” will be shown in Hill Center Room 104 of Ithaca College on Tuesday March 27, 2018. No fee to attend. Professors Betsy Keller and Maureen Hanson will hold a panel discussion about ME/CFS after the movie.