The Chronic Fatigue Syndrome Advisory Committee (CFSAC) June 20 & 21 meeting agenda, audio recordings, and transcripts are now available to the public. This committee provides advice and recommendations to the Secretary of Health and Human Services. Many agencies take part; their presentations follow.
The Weill Cornell Medical Center is recruiting individuals between the ages of 21-65 whose doctor has found no cause for their severe fatigue. Please contact Xiangling Mao by phone at (212) 746-2632 or email at firstname.lastname@example.org for more information about the study and to determine if you are eligible.
Study participation includes a visit to the study physician’s office to fill out a questionnaire on physical and mental health, and a medical examination. If deemed eligible, a visit to Weill Cornell Medicine includes a questionnaire, magnetic brain imaging (MRI), blood draws, urine tests, a cardiopulmonary exercise test (CPET) and positron emission tomography scan (PET). Participants will be compensated for their time.
Please see the NYC -Recruitment-Flyer for additional details, and share it with others who are able to travel to the site if they are deemed eligible.
The second annual Community Symposium on the Molecular Basis of ME/CFS will be held at Stanford University on September 29, 2018. Maureen Hanson is among the distinguished list of speakers.
Sponsored by Open Medicine Foundation (OMF)
WHEN: Saturday, September 29, 2018
WHERE: Paul Brest Hall, Stanford University, Palo Alto, CA
Full details about the symposium can be found here.
UPDATE: Maureen’s complete talk was recorded and can be viewed here.
UPDATE (04-2019): The recruitment flyer has been revised with the new IRB approval number. Please navigate to the flyer link below to retrieve the newest version.
Now that the IRB protocols have been approved, the recruitment and screening of ME/CFS patients and low-active control subjects will begin. To learn more about the process and what determines your eligibility, and to print a flyer to help us recruit participants, please see ME/CFS Recruitment flyer for Ithaca and Los Angeles areas. The total time commitment to participate is about 5 hours, excluding travel to and from the testing site.