Presentations at IACFS/ME Meeting in October 2016

A number of Members of the Cornell ENID Center will present research at the IACFS/ME meeting in October in Fort Lauderdale, Florida.

The patient agenda also includes Daniel Peterson, M.D. on a panel discussion on Rituximab and Emerging Treatments.

The following presentations by Cornell ENID Center members are in the Professional Agenda:

Workshop: How cardiopulmonary exercise testing informs pathology and treatment
Mark VanNess, Ph.D., Christopher Snell, PhD (Workwell Foundation), Betsy Keller, Ph.D. (Ithaca College)

Workshop: Acute and chronic enteroviral infection
John Chia, M.D. (UCLA School of Medicine)

How cardiopulmonary exercise testing informs pathology and treatment
Betsy Keller, Ph.D. (Ithaca College)

Alterations in the enteric bacterial and viral microbiome in ME/CFS
Ludovic Giloteaux, Ph.D. (Cornell University)

N-Acetylcysteine alleviates cortical glutathione deficit and improves symptoms in CFS:
An in vivo validation study using proton magnetic resonance spectroscopy

Dikoma Shungu, Ph.D. (Weill Cornell Medicine)

Mitochondrial dysfunction: A potential etiology for ME/CFS?
Panelist Dikoma Shungu, Ph.D., (Weill Cornell Medicine)

Diagnosing CFS/ME; Difficult clinical cases: focus on fatigue and pain
John Chia, M.D. (UCLA School of Medicine), Dan Peterson, M.D., Sierra Internal Medicine, Nevada

Allergic disorder phenotypes in ME/CFS and patterns of medical comorbidity and clinical dysfunction
Susan Levine, M.D Private Practice, Manhattan, NY and Cornell University

Cardiopulmonary exercise testing demonstrates post-exertional chronotropic incompetence
Mark Van Ness, Ph.D.  (Workwell Foundation)

Subsets of ME/CFS patient responses to a 2-day CPET
Betsy Keller, Ph.D.,  Ithaca College

Polar metabolites distinguish ME/CFS patients and controls
Maureen Hanson, Ph.D., Cornell University

Fellowship opportunity in ME/CFS
Daniel Peterson, M.D., Simmaron Research

Assessment of Neurobiological Dysfunction in Chronic Fatigue Syndrome
Benjamin H. Natelson, Xiangling Mao, Diana Vu, Michelle Blate, Gudrun Lange, Aaron J Stegner, Guoxin Kang and Dikoma C. Shungu

     Poster:  Chronic fatigue syndrome (CFS): a presumptive mitochondrial disorder
     L Bulone, AE Slonim, C Warshafs, M Grovit, T Goldberg, J Chouinard, DC Shungu

Poster: Eukaryotes in the ME/CFS gut microbiome
Alexandra Mandarano, Ph.D. student

The Real Story About Chronic Fatigue Syndrome

A devastating illness that needs a better name
Garnet News October 19, 2016

Chronic Fatigue Syndrome is an illness that many may have heard of, but few, in reality, know much about.

The misconception of the seriousness of the disease is in part caused by the use of the name Chronic Fatigue Syndrome (CFS), coined in 1988 by a committee convened at the Centers for Disease Control. Prior to that recommendation, the disease was known by the more intimidating name Myalgic Encephalomyelitis (ME), which is favored by many patients and still used in many countries overseas. Chronic Fatigue Syndrome trivializes the nature of the disease and its impact on the lives of the people who suffer with it.

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Millions Are Missing: Will The World Finally Notice?

by Maureen Hanson
Huffington Post September  30, 2016

This week, demonstrations occurred in 25 global cities world-wide to focus attention on a neglected, devastating disease — Myalgic Encephalomyelitis (ME), an illness that also goes by the misleading name Chronic Fatigue Syndrome (CFS). At this event, the most powerful demonstrators were those who could not attend — the bedridden and housebound patients.

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Be Aware and Beware: Chronic Fatigue Syndrome is an Equal Opportunity Disease

by Maureen Hanson
Huffington Post   May 20, 2016

Chronic Fatigue Syndrome, or CFS, is an innocuous name given to a debilitating disease. Its seriousness is better indicated by the term Myalgic Encephalomyelitis (ME), a label preferred by many of its victims. On May 17-18, the Department of Health and Human Services hosted the biannual public meeting of the Chronic Fatigue Syndrome Advisory Committee by webinar. This was a fitting time for such a meeting, as May is International ME/CFS Awareness Month.

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When the hoofbeats are zebras

by Maureen Hanson
The Hill    May 11, 2016

An analysis by Johns Hopkins researchers claims that a third of all deaths in the US annually are due to medical errors.  This finding not only calls for better reporting of such errors, but also for better medical training to prevent them.  But death is not the only outcome of medical errors—instead, unnecessary patient suffering can result.

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